The name of the game this week has been exhaustion. Oh you fickle beast! This is the week we, me and my sister Kelsey along with help from our wonderful friend and RN, Corrine, brought my father from Ohio to NY. He lived with his sister, Cookie and her husband Chuck in Tobaccoville, NC up until this week. He now lives in a nursing home in Huntington, NY (Long Island). It’s near my sister and her fiance, Frank, and close enough for me and my boyfriend Matt to visit often. It’s also where he was accepted after his PRI (Patient Review Instrument) and what was most affordable for us until Medicaid kicks in.
This blog will be part reference for anyone else dealing with this terrible disease, part therapy for myself and part nostalgia helping me and my family remember what a great man we’re losing.
But for right now I need to rest my body and my mind and get some hugs from Matt.